ABOUT US

WE ARE A FAMILY OF 5 ADVOCATING FOR THE SMALLEST OF US, DOTTY JAMES

During our 2 week NICU stay in July 2022, Dotty was diagnosed with SCID, Severe Combined Immunodeficiency. Meaning, she has next to no immune system to ward off even the smallest virus. Patients with this diagnosis have a life expectancy of less than two years. However, there is a cure! A bone marrow transplant can completely correct the SCID and give Dotty a chance at a longer life! 

Lab work concluded our older two children, Ruby (6) and Indy (3), were not possible donor matches. We then looked to the NMDP (formerly Be The Match) to a non-relative donor. Unfortunately, she was not a match with anyone in the system either. 

At that point, we started our mission! Dotty went into isolation in her nursery, and we began sharing her story and need for a bone marrow donor match in order to live. People started watching our Instagram and TikTok videos and ordered swab kits to join the registry! After more than a year of praying, advocating, and searching for a donor we met with the transplant doctor who told us there were multiple possible matches for our Dotty!

On March 6th, the transplant team called to let us know they have found Dotty's best available match! We will be admitted to start the process mid-May 2024! This has been over 544 days of waiting for her match! It's a miracle!

All proceeds from Dotty Merch help our single income family with costs of living and saving for transplant expenses. We can't thank you enough for being here and supporting us on this journey.

Sincerely, The Erways

 

Click the link below to follow our journey on instagram:

https://www.instagram.com/bekaherway/